For Parents at Lumen: 4 Steps to Protecting a Child with Disabilities

Healthcare Provider Update: Healthcare Provider for Lumen Lumen Technologies offers healthcare benefits through various providers, with a significant partnership with Cigna Healthcare for their employee health plans. Cigna provides a range of coverage options including medical, dental, and vision care, tailored to meet the diverse needs of Lumen's workforce. Healthcare Cost Increases in 2026 In 2026, healthcare costs are projected to experience significant increases, largely driven by the expiration of enhanced federal premium subsidies under the Affordable Care Act (ACA). As insurers anticipate premium hikes of around 20% on average, many states are reporting increases of over 60% in some plans. This perfect storm of rising medical expenses, coupled with increased demand for services and labor shortages, could push out-of-pocket premiums for 92% of ACA enrollees up by more than 75%. Consequently, individuals may face considerable financial barriers to accessing adequate healthcare coverage moving forward. Click here to learn more

Parents employed in Lumen may relate to how raising a child is expensive and can cost a quarter of a million dollars, not including college. For a child with special needs, that cost can more than double.1 If you’re the parent of a special needs child, it’s vital to ensure your child will continue to be provided for after you’re gone. It can be difficult to contemplate, but with patience, love, and perseverance, a long-term strategy is attainable and can help bring some peace of mind.

Envisioning a Life Without You

Just as every child with special needs is unique, so too are the challenges facing their families when planning for the long term. As an employee of Lumen, you must think about the potential needs of your child. Will they require daily custodial care? Ongoing medical treatments? Will your child live alone or in a group home? Can family members assume some of the care? Answers to these and other questions can help form the vision of what may need to be done to plan for your child’s care.

Planning Your Estate

Without proper planning, your child’s lifetime needs can quickly outstrip your funds. With that under consideration, those in Lumen may want to consider government benefits, such as Supplemental Security Income (SSI) and Medicaid, which your child may qualify for depending on their situation. Because such government programs have low-asset thresholds for qualification, you may want to consider whether to make property transfers to your special needs child.

As an employee of Lumen, you should also make sure you have an up-to-date will that reflects your wishes. Consider creating a special needs trust, the assets of which can be structured to fund your child’s care without disqualifying them from government assistance.2

Involve the Family

All affected family members should be involved in the decision-making process. If at all possible, it’s best to have a united front of surviving family members to care for your child after you’ve passed on.

Identify a Caregiver

In order for a caregiver to make financial and health care decisions after your child reaches adulthood, the caregiver must be appointed as a guardian. Those in Lumen may want to consider how this can take time, so start setting this in motion as soon as you can amidst your busy work schedule.

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To do this, you can write a “Letter of Intent” to the caregiver and family to express your wishes along with information about your child’s care. Lumen parents must acknowledge that although this isn’t a legal document, it may help to communicate your desires. Store this letter alongside your will, in a safe place.

Lumen parents must understand that planning for a child with special needs can be complicated and overwhelming, but you don’t have to do it alone. Working with loved ones and qualified professionals can help you navigate the various facets of this challenge. If we can help, please don’t hesitate to reach out.

1. Policygenius, 2019
2. Using a trust involves a complex set of tax rules and regulations. Before moving forward with a trust, consider working with a professional who is familiar with the rules and regulations.